Two elderly couples in my tiny Jewish congregation are facing the same tragic problem: the wife is sinking into dementia. All involved were very bright in their prime. Both couples are well-to-do and live in beautiful homes.
A neighbor faced a similar problem but in this case it was the husband who got Alzheimer’s disease and recently died after a fall in memory care.
I visited one of the couples the day before yesterday. The husband (75) is a brilliant Jungian psychologist and musician. The wife (80) had torn her Achilles tendon out of her heel bone and spent 11 days in the hospital, followed by several days in memory care. She is in a boot because she was deemed too risky for surgery. She was ejected from memory care. (I don’t know why.) She was sent home with her husband who hired a young woman caretaker.
Normally a charming, loving person (though recently incoherent) she was apathetic. The caretaker helped seat her.
I began to sing “Lean on Me” and the husband brought out his guitar. We sang uplifting songs for an hour. Finally, the husband sang an original love song looking into her eyes, his voice breaking. Near the end, the wife hummed a few bars of harmony. Tears were running down my face.
Yesterday, I e-mailed the husband to ask if my visit was too tiring for her. He said that she is back in the hospital.
We all have to be aware of the potential for needing care for ourselves (and potentially family members) as we age. Although acute care is covered by Medicare, long-term care is not. Married people can take care of each other to a certain extent, but caregiving is unbelievably stressful and there’s the potential of both needing care at the same time. Caregivers are paid by the hour even if they live on the property so round-the-clock care needs at least 4 people (which covers holidays).
Young people don’t appreciate the difficulty of caregiving. People with dementia may become incontinent. (A neighbor has this situation with her mother-in-law.) They may become belligerent. They may wander.
Single people have to build a safety net for themselves. This is doubly true for a disabled person, like my double-amputee friend who died at home. He had twice previously fallen in his house away from his phone and only a coincidental visit from a friend found him after many hours on the floor.
Personal care is very, very expensive. TMF’s trenchrat wrote that money “melts away like ice cream on a Florida sidewalk” when he got cancer. He died before he needed years of extended care.
My trust leaves a bundle to my heirs but only after taking care of myself and DH. People who advise giving away significant amounts of money while relatively young and healthy are either very, very rich (enough to spend many hundreds of thousands on elder care with plenty left over) or not aware of the potential cost of getting old. This is like donating a kidney when you’re healthy and don’t know if you will develop a problem in the other kidney later.
I’m very upset about the tragedy of these people, who are all so fine and worthy of a happy ending which will not come. I can easily visualize a similar situation for my husband and myself.
Wendy