Yikes. I will especially miss the posts and people on this board
UPDATE
Having ups & downs w/the hubster, but he’s definietly going downhill. Running experiments with psychoactive meds. He’s usually sleeping better, a big plus for me. Depakote is also an anti-seizure med. He didn’t have his every-5-weeks seizure, so it seems to be working even though I’m not yet all the way up to full dose.
I occasionally have to feed him now. I did last night’s dinner–cut up marinated lamb chops and steamed broccoli. He enjoyed it, but coudln;t seem to figure out or motivate himself to use his fork. I gave him a snack of tortilla chips with guacamole and salsa the other day–I think he couldn’t figure out how to eat that either. It took him a minute to figure out how to eat toasted sourdough bread with tomato and melted cheese (mini-pizza?) for lunch. I served veggie sticks w/tahini dip on the side as a switch from salad–he wouldn’t touch it. He never has trouble eating salad, eggs in any form, hot or cold cereal, burger/chicken sandwich/veggie burger. Most likely to have trouble with mixed-together food (souup, casseroile, “bowl,” and sometimes meat & cooked veg like last night–alsthough he ate lamb chop & green beans the previous night). He always lets me feed him when he won;t/can;t eat himself, and is very cooperative. Is eating a wee bit less these days. Also I can’t get him to take any of his gummy vites other than occasionally the multi. In particular, spits out the fish oil gummy and K2+D3 gummy. They taste fine, so it’s not that.
Had some poo in his Depends for the first time yesterday. He also put the toilet paper from wiping after the toileted poo into the Depends(?!). Luckily he;s usually OK with me washing his bum every morning (aside from 2 showers a week, which the aides usually do now–one is on vacay this week so I will have to shower him tomorrow).
For the first time yesterday, he was uncooperative with my shaving him. Never got his chin & neck done(!). On rare occasions he’s uncooperative with getting his hands, face, armpits, bottom washed. I get a lot of exercise getting him dressed/undressed(!) as even when cooperative, there’s a lot of bending, pulling, etc. I always leave him to button his own shirt–keeps him busy for 20, 30 minutes so I can shower(!) in case he didn’t take an after-breakfast nap (when I usually prefer to shower).
With aides ~12 hours/week, I have time to visit Mom every week, which pleases her. And I how have time to take a long, brisk walk twice a week while leaving the hubster with an aide. However, I’ve stopped bringing my brother dinner every weekend. His aide provides all his food so it was just extra, and DH needs to get undressed for bed right after dinner or he might fall asleep in his clothes in his chair before I get that done. That’s when I used to bring bro his dinner, sometimes leaving the hubster home alone (for 20-30 minutes) if he didn’t want to come. I’m worried now he’ll fall asleep in the car and not want to get up. And I don’t leave him hime alone longer than it takes me to deal with the garbage, get the mail, or water my herbs.